ALISO VIEJO, Calif. -- (BUSINESS WIRE) -- On September 13th, 2014, over 600 attendees will gather at the Hyatt Regency Resort and Spa in Huntington Beach, CA, for the third annual Tribute to Champions of Hope Gala, hosted by Global Genes™. This annual sold-out event brings together rare disease stakeholders including patients, advocates, biotech and pharmaceutical executives, rare disease researchers, celebrities, and philanthropists.
The Tribute to Champions of Hope Gala celebrates the pioneering achievements of individuals and corporations in the rare and genetic disease community who are leading the fight against rare disease. This event continues to raise awareness for the over 7,000 different types of rare diseases that affect roughly 30 million Americans and approximately 350 million people worldwide. Proceeds from the evening will benefit Global Genes’ educational programs, as well as the innovative Undiagnosed Patient Program, which aims to support the start of the rare disease journey for undiagnosed patients through direct funding for complex diagnostics, including genome sequencing.
Global Genes is pleased to announce the evening award recipients:
“We are always humbled this time of year when we bring together advocates and scientists who are leading efforts in the fight against rare disease,” said Nicole Boice, CEO of Global Genes, “There is always more work to be done, but this event gives us the opportunity to honor and recognize those who are innovating, inspiring and teaching all of us what it really means to be a Champion.”
Global Genes will also be hosting the Third Annual RARE Patient Advocacy Summit™ in conjunction with the Tribute to Champions of Hope Gala, September 11-12, 2014, which raises funds and awareness for rare diseases. The purpose of the RARE Patient Advocacy Summit is to help patient advocates become successful activists and provide the discussion, insights, and tools to move down this advocacy path, equipped and prepared. Some of this year’s partners include FasterCures, Health 2.0, Caregiver Action Network and Smart Patients. This event will also be available to view via Livestream, in real-time, for those who cannot attend in person.
To date, sponsors of the 2014 Tribute to Champions of Hope Gala and RARE Patient Advocacy Summit include the following organizations: Walgreens, Alexion, Pfizer, Shire, Genzyme, Vidara, BIO, AstraZeneca, Raptor, Recordati Rare Diseases, Amicus Therapeutics, Jazz Pharmaceuticals, Sigma-Tau Pharmaceuticals and Sarepta Therapeutics.
To learn more, register for these events, or for sponsorship opportunities, please visit www.globalgenes.org/events
About Global Genes – Allies in Rare Disease
Global Genes™ is a leading rare disease patient advocacy organization. The group’s mission is to eliminate the challenges of rare disease, by providing patients with educational tools, building awareness, providing critical connections to people and resources, and through investment in technologies that will positively impact affected patients and families. Recognized worldwide by the Blue Denim Genes Ribbon™, Global Genes unites experts, advocates and patients of all ages to stand together in hope for treatments and cures for the estimated 7,000 rare and genetic diseases that impact approximately 30 million Americans and over 350 million people worldwide.